‘The most painful condition known to medicine’: Highbury CRPS sufferer petitions health secretary over healthcare provision

PUBLISHED: 16:25 29 August 2018 | UPDATED: 08:48 30 August 2018

Helena Stone is petitioning for chronic regional pain syndrome to be a 'properly recognised condition' on the NHS. Picture: Helena Stone

Helena Stone is petitioning for chronic regional pain syndrome to be a 'properly recognised condition' on the NHS. Picture: Helena Stone


A young woman with from Highbury is petitioning the health secretary to make her rare illness “a properly recognised condition” on the NHS.

Helena Stone, 21, of Calabria Road, has suffered from complex regional pain syndrom (CRPS) since she was 16-years-old.

Helena says GPs in Islington and all over the country lack knowledge of the condition, and has started a petition to raise awarness, which has so far gained more than 800 signatures.

“In Islington it’s really hard to find a GP with an idea of what CRPS means,” said Helena. “Whenever I go to the hospital I have to explain it to the doctor or nurse and quite a few people have told me: ‘It’s just psychological’, which is very demoralising. CRPS is the most painful condition known to medicine and can make life unbearable.”

The NHS website describes CRPS as a “poorly understood condition in which a person experiences persistent severe and debilitating pain.”

Click here.

Latest Islington News Stories

Yesterday, 16:28

A cyclist is critically injured after she was hit by a car in Clerkenwell this morning.

Yesterday, 15:22

Islington’s revamped Milner Square Gardens has been celebrated by the community following its £235,000 revamp.

A murder investigation has been launched after a 25-year-old man was stabbed to death in Tufnell Park last night.

Tue, 18:35

An Islington teen reached the finals of the London Fashion Week in Covent Garden on Monday.

Tue, 18:21

Verity Painter is the first woman to become a licensed UK boxing MC. When she isn’t doing that she’s voicing adverts or reading the Gazette to the blind. The ‘Queen of Queensberry’ spoke to Lucas Cumiskey.

Tue, 15:28

A trailblazing scheme from Islington Council will give small independent businesses the chance to rent top quality workspaces at genuinely affordable prices.

Tue, 13:50

Two rogue landlords have been prosecuted for dangerous and sub-standard conditions after Islington Council found 35 people living in a two bedroom flat in Grosvenor Avenue.

Mon, 19:26

Emily Thornberry today branded Universal Credit a “complicated and intimidating system” while speaking at a community conference in Holloway Road.


Fostering older teenagers means giving them the skills for life as an adult. Here, a supportive lodgings carer with Islington Council and young adult who has left care share their stories

Newsletter Sign Up

Islington Gazette twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Most read

Show Job Lists

Digital Edition


Enjoy the
Islington Gazette
e-edition today


Education and Training


Read the
Education and Training
e-edition today

Read Now