Search

Holloway boy, 10, with rare genetic disorder given charity cash boost

PUBLISHED: 17:13 26 August 2014

Calvin Mersereau

Calvin Mersereau

Archant

A ten-year-old boy suffering from a rare genetic disorder has been given a vital cash boost from a charity.

Calvin Mersereau, 10, of Dalmeny Avenue, Holloway was diagnosed with an abnormality in chromosome 18 as a baby, meaning that he suffers from hearing loss, significant learning difficulties and developmental issues.

But thanks to £7,500 from charity Jeans for Genes, via Chromosome 18 Europe, Calvin and his parents were able to attend a special conference to learn about the condition and how to make Calvin’s live easier.

Calvin’s mum, Miranda, 45, said: “We are eternally grateful for the work of Chromosome 18 Europe, they provide us with a huge amount of information that even doctors at Great Ormond Street [children’s hospital] don’t have.”

“Attending the conference allowed us to measure our journey emotionally, we met parents with newly-diagnosed children and we were privileged to meet parents caring for adult children with the disease.

“Although their children might have different symptoms, we all have similar experiences to share. The charity has been brilliant in making this possible.”

She added: “Chromosome 18 diseases definitely need a lot more awareness. It’s not like autism or down’s syndrome, the ratio of support for the important work of Chromosome 18 Europe reflects the relatively small number of people affected.”

The conference, held in Manchester last month, was only the third of its kind ever held in Europe.

It showcased the latest research into conditions and looked at ways to help improve the lives of those affected by it, including workshops on how to deal with difficult behaviour.

The £7,500 paid for crèche costs for Calvin, who attends the Bridge School, in Hungerford Road, Holloway.

Knowing he would be cared for in a safe and understanding environment allowed his mum and dad to attend workshops throughout the event.

Jeans for Genes day, on September 19, is an event to help children like Calvin and thousands of other sufferers of genetic disorders.

For a free fundraising pack, by visit www.jeansforgenesday.org.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other Islington Gazette visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by Islington Gazette staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique Islington Gazette account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

Latest Islington News Stories

10:32

When three mums set up the Essex Road Pre-School in an old launderette next to the Marquess Estate in 1977, they didn’t expect it to be going strong 40 years later.

11:17

Police are searching for a man who has gone missing from Islington.

Yesterday, 18:55

A headteacher leaving Montem Primary School after a decade at the helm believes staff and students are set for an exciting new chapter.

Yesterday, 16:05

A Finsbury Park pensioner has been waiting 18 months for repairs to his house after gas workers left the job half done.

Yesterday, 14:34

After 32 years and 5,000 tenants, the old YMCA hostel in Errol Street has been demolished. Not many at the charity will miss it.

Yesterday, 11:15

Ninety knives – including machetes and meat cleavers – have been given up to police in the space of six weeks.

Yesterday, 09:35

A popular Cally off-licence has escaped with a two-week suspension of its alcohol licence after it was allegedly caught doing a dodgy booze deal.

Yesterday, 07:00

Two carers meant to be looking after a terminally ill Cally man forged each other’s signatures so they could bunk off work, it has been claimed.

Newsletter Sign Up

Sign up to receive our regular email newsletter

Most read

Show Job Lists

Digital Edition

cover

Enjoy the
Islington Gazette
e-edition today

Subscribe

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now