Search

Holloway boy, 10, with rare genetic disorder given charity cash boost

17:13 26 August 2014

Calvin Mersereau

Calvin Mersereau

Archant

A ten-year-old boy suffering from a rare genetic disorder has been given a vital cash boost from a charity.

Calvin Mersereau, 10, of Dalmeny Avenue, Holloway was diagnosed with an abnormality in chromosome 18 as a baby, meaning that he suffers from hearing loss, significant learning difficulties and developmental issues.

But thanks to £7,500 from charity Jeans for Genes, via Chromosome 18 Europe, Calvin and his parents were able to attend a special conference to learn about the condition and how to make Calvin’s live easier.

Calvin’s mum, Miranda, 45, said: “We are eternally grateful for the work of Chromosome 18 Europe, they provide us with a huge amount of information that even doctors at Great Ormond Street [children’s hospital] don’t have.”

“Attending the conference allowed us to measure our journey emotionally, we met parents with newly-diagnosed children and we were privileged to meet parents caring for adult children with the disease.

“Although their children might have different symptoms, we all have similar experiences to share. The charity has been brilliant in making this possible.”

She added: “Chromosome 18 diseases definitely need a lot more awareness. It’s not like autism or down’s syndrome, the ratio of support for the important work of Chromosome 18 Europe reflects the relatively small number of people affected.”

The conference, held in Manchester last month, was only the third of its kind ever held in Europe.

It showcased the latest research into conditions and looked at ways to help improve the lives of those affected by it, including workshops on how to deal with difficult behaviour.

The £7,500 paid for crèche costs for Calvin, who attends the Bridge School, in Hungerford Road, Holloway.

Knowing he would be cared for in a safe and understanding environment allowed his mum and dad to attend workshops throughout the event.

Jeans for Genes day, on September 19, is an event to help children like Calvin and thousands of other sufferers of genetic disorders.

For a free fundraising pack, by visit www.jeansforgenesday.org.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other Islington Gazette visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by Islington Gazette staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique Islington Gazette account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

Latest Islington News Stories

23 minutes ago
Fabric in 2016. Picture: Danny Seaton

Farringdon club Fabric is only 17 years old but already has legendary status. With its future uncertain, James Morris asks why it evokes such feeling.

Yesterday, 14:35
Victoria Azubuike has launched The Us Programme to help young women reach their goals

Many 19-year-olds will be spending the summer partying, travelling or relaxing. But not Victoria Azubuike.

Yesterday, 14:30
Pokemon Go. Picture: Isabel Infantes/Empics Entertainment

The Pokémon Go craze has swept the world – as well as Islington’s 10 libraries.

Yesterday, 12:48
Tragedy: Dr Claire Sheppey (Picture: Barts and London School of Anaesthesia)

A hero doctor from the 7/7 response team died after discarding a cigarette in a plastic bag – causing a huge fire to rip through her Canonbury flat.

Yesterday, 07:00
Members of the St Luke's Community Centre early dementia service. Picture: Polly Hancock

St Luke’s Community Centre in Finsbury is set to lose its annual £26k council grant for a vital early dementia service. James Morris visited sufferers as they made a last-ditch plea for Islington Council to review its decision.

Mon, 16:04
Kebin Lomammy

Police in Islington are appealing for the public’s help to find a missing teenage boy who was last seen at his home six weeks ago.

Mon, 14:27
Islington Gazette August 22, 1986

Fruit machines were swallowing the wages of young postal workers at Islington’s Northern District Office in Upper Street.

Mon, 13:53
Labour leader Jeremy Corbyn with Sadiq Khan, then a candidate for London mayor, on a London living wage protest outside Arsenal's Emirates Stadium in November last year. Picture: Nigel French/PA Wire

Mayor of London Sadiq Khan has snubbed Jeremy Corbyn’s leadership of the Labour party.

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now

Newsletter Sign Up

Most read news

Competitions

You could win £15,000 to spend on either their mortgage or a deposit towards the home of their dreams

Wouldn’t it be lovely to have a period of time when you simply don’t have to worry about finding the money each month to pay your mortgage? When you don’t have to put money aside from your monthly income, or worry about having to afford other essential outgoings?

Which book character do you share cleaning habits with?

Whether you have more in common with put-upon Cinderella, emotionally turbulent Jane Eyre, or easily distracted Mole, you’re sure to appreciate that one lucky winner will receive four sessions of free cleaning. Enter our quiz for your chance to win. All runners up will get £10 off their first clean when making a repeat booking.

Digital Edition

cover

Enjoy the
Islington Gazette
e-edition today

Subscribe

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now