Search

Holloway boy, 10, with rare genetic disorder given charity cash boost

17:13 26 August 2014

Calvin Mersereau

Calvin Mersereau

Archant

A ten-year-old boy suffering from a rare genetic disorder has been given a vital cash boost from a charity.

Calvin Mersereau, 10, of Dalmeny Avenue, Holloway was diagnosed with an abnormality in chromosome 18 as a baby, meaning that he suffers from hearing loss, significant learning difficulties and developmental issues.

But thanks to £7,500 from charity Jeans for Genes, via Chromosome 18 Europe, Calvin and his parents were able to attend a special conference to learn about the condition and how to make Calvin’s live easier.

Calvin’s mum, Miranda, 45, said: “We are eternally grateful for the work of Chromosome 18 Europe, they provide us with a huge amount of information that even doctors at Great Ormond Street [children’s hospital] don’t have.”

“Attending the conference allowed us to measure our journey emotionally, we met parents with newly-diagnosed children and we were privileged to meet parents caring for adult children with the disease.

“Although their children might have different symptoms, we all have similar experiences to share. The charity has been brilliant in making this possible.”

She added: “Chromosome 18 diseases definitely need a lot more awareness. It’s not like autism or down’s syndrome, the ratio of support for the important work of Chromosome 18 Europe reflects the relatively small number of people affected.”

The conference, held in Manchester last month, was only the third of its kind ever held in Europe.

It showcased the latest research into conditions and looked at ways to help improve the lives of those affected by it, including workshops on how to deal with difficult behaviour.

The £7,500 paid for crèche costs for Calvin, who attends the Bridge School, in Hungerford Road, Holloway.

Knowing he would be cared for in a safe and understanding environment allowed his mum and dad to attend workshops throughout the event.

Jeans for Genes day, on September 19, is an event to help children like Calvin and thousands of other sufferers of genetic disorders.

For a free fundraising pack, by visit www.jeansforgenesday.org.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other Islington Gazette visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by Islington Gazette staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique Islington Gazette account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

Latest Islington News Stories

Yesterday, 17:10
Grafton Primary School went on strike at Freightliners Farm, Holloway, as part of the national campaign against SATs in Key Stage 1. Picture: Ellie Hoskins

It’s 10am and the placards are out. The faces are youthful, but determined. They are on strike against government policy. But these are no junior doctors.

Yesterday, 12:00
Monty looking sorry for himself at Harmsworth Animal Hospital, Holloway

A severely injured kitten found callously dumped in an Archway bin store late last year has this week become the first pet to be rehomed overseas by the RSPCA.

Yesterday, 09:35
Holloway Prison

Two hundred inmates at Holloway Prison are today preparing to move 20 miles away to Downview prison in Surrey.

Sunday, May 1, 2016
Jeremy Corbyn addresses the crowd in Clerkenwell Green to mark the May Day rally. Picture: Anthony Devlin/PA Wire

Jeremy Corbyn today became the first Labour leader in 50 years to address the May Day rally in Clerkenwell Green.

Friday, April 29, 2016
Sam Parrington of the Pilion Trust at the exhibition in Caledonian Road on Wednesday. Picture: Andy Commons (andycommonsimages.com)

It isn’t just older people who fall on hard times. James Morris finds out about the sad reality of homeless young people in the capital – and how charities like The Pilion Trust and Project One Zero are working in Islington to give them a creative outlet.

Friday, April 29, 2016
Cricket fan: David Pearce (Picture: Ken Mears)

A wheelchair-bound Canonbury pensioner must fork out £450 for a season of matches he cannot attend – or face exclusion from the elite cricket club that runs Lord’s.

Thursday, April 28, 2016
Protesters release balloons outside HMP Holloway yesterday (Picture: Jade Jackman)

More than two hundred people lit flares and released balloons outside Holloway Prison in protest against violence towards women in government institutions.

Thursday, April 28, 2016
Caledonian ward councillors are calling for HGVs to stop using Copenhagen Street as a shortcut. Picture: Cally Labour

Cement mixing company Cemex has instructed its drivers to comply with the HGV ban in Copenhagen Street, near King’s Cross.

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now

Newsletter Sign Up

Most read news

Competitions

Kindle 7 inch tablet

Are you looking for a brand new gadget to help you stay connected on the go and make that long journey home a bit more entertaining? Look no further. MyOffers is giving you the chance to win 1 of 50 Kindle Fire 7” Display Tablets! That’s 50 times more chances to win, so hurry up and enter our competition today and you could be one of our lucky winners!

Yummy traditional afternoon teas for two

MyOffers is giving you the chance to win 1 of 50 Traditional Afternoon Teas for two at a location of your choice! That’s 50 times more chances to win, so hurry up and enter our competition today and you could be one of our lucky winners!

Digital Edition

cover

Enjoy the
Islington Gazette
e-edition today

Subscribe