Search

Islington kids Arlo and Darcey inspire 20-strong Ben Nevis attempt in aid of Dravet Syndrome research

PUBLISHED: 15:03 15 May 2017 | UPDATED: 10:59 16 May 2017

The Islington climbers taking on the Ben Nevis challenge in aid of Dravet syndrome research. Picture: Dravet Syndrome UK

The Islington climbers taking on the Ben Nevis challenge in aid of Dravet syndrome research. Picture: Dravet Syndrome UK

Archant

Two Islington kids with a rare severe form of epilepsy have inspired no fewer than 20 fundraisers to climb Ben Nevis in the hope of raising £20,000.

Arlo Wilson with mum Galia. Picture: Dravet Syndrome UK Arlo Wilson with mum Galia. Picture: Dravet Syndrome UK

They both suffer from Dravet syndrome, a complex condition that causes seizures and issues with development.

Arlo Wilson, nine, had his first seizure at just 10 weeks old, although it wasn’t properly diagnosed until he was three and a half due to a lack of knowledge about the condition.

His mum Galia and fellow parent Shereene Mcready – whose daughter Darcey, two, also has the condition – have together rounded up 18 other intrepid hikers to tackle the Scottish peak to raise funds and awareness about Dravet Syndrome.

“People used to think one in 40,000 had this illness,” Galia said. “Now they’ve realised it’s closer to one in 15,000 because so many people weren’t getting diagnosed properly.

Arlo Wilson with mum Galia. Picture: Dravet Syndrome UK Arlo Wilson with mum Galia. Picture: Dravet Syndrome UK

“Dravet Syndrome UK provides a wonderful support network for people – they’ve given me so much great advice and put me in contact with other people in a similar position to me.

“I want to give something back.”

Training for the hike has already begun as the group prepare to tackle the highest mountain in the UK.

“I ran 19km today and to tell you the truth I’m absolutely shattered,” said Galia.

“I know others have been running up and down the stairs of their houses to try and get themselves into better shape for it.”

Latest Islington News Stories

Yesterday, 11:49

After months of delays, disruption and the dreaded rail replacement bus, commutes are finally set to get better for London Overground passengers.

Yesterday, 07:18

More than 15 per cent of Islington Clinical Commissioning Group’s cancer patients waited at least two months to start treatment following GP referral, according to NHS figures.

Yesterday, 07:10

Islington’s courts were being filled with cases of lazy people “borrowing” cars without the owner’s consent.

Tue, 17:08

Shocked commuters witnessed a huge road rage punch-up in the middle of Holloway Road this morning – during which a man was attacked with a baseball bat.

Tue, 15:33

Health chiefs say there were “few, if any” signs that could have helped them prevent Finsbury Park man Bidhya Sagar Das from killing his son with a hammer.

Tue, 14:44

The senior coroner for inner north London Mary Hassell is set to hold a public consultation into the new policy for how she should deal with deaths in the area, but has only given people a matter of days to send in written submissions.

Tue, 14:22

Whittington Hospital was turning pregnant women away as its maternity ward couldn’t cope with a north London baby boom.

Tue, 11:08

Jeremy Corbyn this morning praised his “magnificent” community as Islington marked one year since the Finsbury Park terror attack.

PROMOTED CONTENT

Fostering older teenagers means giving them the skills for life as an adult. Here, a supportive lodgings carer with Islington Council and young adult who has left care share their stories

Newsletter Sign Up

Islington Gazette twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Most read

Show Job Lists

Digital Edition

cover

Enjoy the
Islington Gazette
e-edition today

Subscribe

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now