Charity event at Emirates to send terminally ill Highbury boy on trip of a lifetime
PUBLISHED: 12:06 05 November 2013 | UPDATED: 12:06 05 November 2013
The family of a terminally ill five-year-old boy from Highbury are desperate to cherish the time they have left together.
Eoghan Clair, of Priory Street, was diagnosed with a rare and aggressive type of brain tumour just two days after his fifth birthday.
Four days later, after a six hour operation, his parents Dermott Clair and Jodie Harvey were told he would be unlikely to reach his sixth birthday.
Having been healthy up to the age of four, Eoghan has spent the last month at Great Ormand Street Hospital, and started a six week course of radiotherapy on Yesterday (Novermber 4), which will be followed by chemotherapy.
In a desperate bid to help the family, Eoghan’s godmother Gemma Crowe is organising a charity wishing well gala for the five-year-old to fund a holiday for the family, which includes his brothers Aidan, seven, and Aarron, 20 months.
Mrs Crowe, 28, of Drayton Park, Highbury, said: “I’ve known Eoghan’s mother Jodie since I was about four and she’s practically a sister to me.
“Eoghan is just a normal five-year-old boy, he’s really in to the police and he wants to be a policeman when he grows up.”
“It has been an incredibly difficult time for Eoghan and his family and with every new day we have renewed hope”
Statistically, those with Eoghan’s condition have a life expectancy of less than a year.
Feeling helpless in the face of her friend’s life falling apart, Mrs Crowe is now calling on the community to help the family celebrate the time they have left with Eoghan.
She will be holding a charity gala on November 30 at the Emirates Stadium, with dinner and an auction.
“When we found out it was terminal I wanted to do something so that they could have some cherished memories,” said Mrs Crowe.
“All the money raised on the night will go directly to Eoghan’s family and will hopefully help to ease some burden during this uncertain time.
“We’re hoping to raise £5,000 for a holiday of a lifetime, possibly to Florida, as well as funds to redecorate his bedroom and provide a simulating sensory environment for his post-treatment recovery.”
Another aim of the gala is to raise awareness for the HeadSmart campaign, which aims to improve the detection of the symptoms of brain tumours in children and young people.
Arsenal FC have donated the venue for the event and Catering Etc is providing the three-course-meal at cost price, which comes with the £50 ticket.
For information on tickets or how to get involved with the event e-mail Gemma Crowe on Gemma.Crowe@addleshawgoddard.com or go to www.facebook.com/EoghansWishingWell
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